sicklecellanemianews8d
Lessons learned from my most recent sickle cell pain crisis
When a sickle cell pain crisis landed her in the hospital, columnist Mary Shaniqua soon identified the cause: getting two ...
sicklecellanemianews8d
SCD patients free of VOEs after treatment with gene-editing therapy
Nearly all the patients with severe SCD treated with the gene-editing therapy reni-cel remained free of VOEs for up to two ...
sicklecellanemianews10d
Etavopivat may reduce VOC rate, increase hemoglobin in SCD
Data from a Phase 2/3 trial shows etavopivat may reduce the incidence of vaso-occlusive crises and raise levels of hemoglobin ...
sicklecellanemianews15d
Why it’s important to celebrate good care when we receive it
Sickle cell patients often face challenges when implementing their care plans. Columnist Mary Shaniqua describes what good ...
sicklecellanemianews18d
Most SCD patients given Lyfgenia in trials stay free of VOEs: New data
The majority of SCD patients given Lyfgenia in clinical trials remained free of vaso-occlusive events (VOEs) following ...
sicklecellanemianews29d
I’m learning to manage my anxiety as a sickle cell caregiver
Caregiving is a journey I hold close to my heart, especially as it involves my dear cousin Ada, a vibrant adolescent and a true warrior living with sickle cell disease. Yet I must admit, this journey ...
sicklecellanemianews16d
Most patients free of vaso-occlusive crises for years after Casgevy dose
Most people with sickle cell disease (SCD) who received the gene-editing therapy Casgevy (exagamglogene autotemcel) in clinical trials have been free from vaso-occlusive crises (VOCs) over several ...